Babies are tested shortly after birth for diseases and disorders. A simple heel prick and a few drops of blood can tell if your child was born healthy. Not every state tests for all treatable diseases. Some children live, some die and others live a life full of pain, disabled. In some states these same children may have lived a healthy life if only they were tested and treated for their disease.

Our son Liam did not have the chance to live.

In November 2010, Illinois will start a "pilot program" for newborn testing of Krabbe disease, and state wide testing will begin in May 2011.

Get information on Newborn Screening in your state