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The “Liam Hammonds Memorial Foundation” is a registered 501 (c) 3 organization and
was formed in 2003, named after our son Liam, who passed at the age of 9 1/2 months of
a terrible disease called Krabbe disease, a Leukodystrophy that in most cases, when
diagnosed as “infantile Krabbe” takes the life of the child within 12-14 months of age. In
most cases the disease goes undiagnosed until treatment is not an option. Most Doctors
are unaware of the symptoms of Krabbe and the child is usually thought to have “normal”
problems such as Colic or food allergies.
Our foundation was formed in hopes of promoting awareness, and financial assistance to
Families of Krabbe children and others afflicted with Leukodystrophies. In some cases it
could be medical equipment, such as suction machines, breathing machines, and feeding
machines.
We also help with transportation and living expenses, while children are being treated at
Hospitals during their evaluations or Cord Blood Stem Cell Transplants, which is the only
treatment available for this disease as of this date. Unfortunately, at times, we are also
asked to help with funeral expenses. A portion of the money raised also goes to the
“Hunters Hope” Organization to support their efforts in promoting Newborn Screening
for all metabolic diseases including Krabbe, with hopes of finding a cure for this, and
other Leukodystrophies.
The Liam Hammonds Memorial Foundation raises money to accomplish our goals in two
ways, by holding benefits and fund raisers, and by accepting private donations. Through
the Benefits / Fund raisers, we incorporate two of our goals, raising money, and
promoting awareness. We feel that the general public is the easiest way to get the word
out. Through the public, we’re able to pass on information to parents, who then will pass
it on to their doctors.
We are, unfortunately, finding that Krabbe is not as rare as we were told when Liam was
diagnosed. So there is still much more work to be done.
Our final goal is to someday see that the Liam Hammonds Memorial Foundation is no
longer needed, as there will be newborn screening, and immediate treatment for Krabbe
and other Leukodystrophies.
was formed in 2003, named after our son Liam, who passed at the age of 9 1/2 months of
a terrible disease called Krabbe disease, a Leukodystrophy that in most cases, when
diagnosed as “infantile Krabbe” takes the life of the child within 12-14 months of age. In
most cases the disease goes undiagnosed until treatment is not an option. Most Doctors
are unaware of the symptoms of Krabbe and the child is usually thought to have “normal”
problems such as Colic or food allergies.
Our foundation was formed in hopes of promoting awareness, and financial assistance to
Families of Krabbe children and others afflicted with Leukodystrophies. In some cases it
could be medical equipment, such as suction machines, breathing machines, and feeding
machines.
We also help with transportation and living expenses, while children are being treated at
Hospitals during their evaluations or Cord Blood Stem Cell Transplants, which is the only
treatment available for this disease as of this date. Unfortunately, at times, we are also
asked to help with funeral expenses. A portion of the money raised also goes to the
“Hunters Hope” Organization to support their efforts in promoting Newborn Screening
for all metabolic diseases including Krabbe, with hopes of finding a cure for this, and
other Leukodystrophies.
The Liam Hammonds Memorial Foundation raises money to accomplish our goals in two
ways, by holding benefits and fund raisers, and by accepting private donations. Through
the Benefits / Fund raisers, we incorporate two of our goals, raising money, and
promoting awareness. We feel that the general public is the easiest way to get the word
out. Through the public, we’re able to pass on information to parents, who then will pass
it on to their doctors.
We are, unfortunately, finding that Krabbe is not as rare as we were told when Liam was
diagnosed. So there is still much more work to be done.
Our final goal is to someday see that the Liam Hammonds Memorial Foundation is no
longer needed, as there will be newborn screening, and immediate treatment for Krabbe
and other Leukodystrophies.
| The Liam Hammonds Memorial Foundation Helping Children and Families dealing with Krabbe and other Leukodystrophies |