About Us

The “Liam Hammonds Memorial Foundation” is a registered 501 (c) 3 organization and was formed in 2003, named after our son Liam, who passed at the age of 9 1/2 months of a terrible disease called Krabbe disease, a Leukodystrophy that in most cases, when diagnosed as “infantile Krabbe” takes the life of the child within 12-14 months of age. In most cases the disease goes undiagnosed until treatment is not an option. Most Doctors
are unaware of the symptoms of Krabbe and the child is usually thought to have “normal” problems such as Colic or food allergies.

Our foundation was formed in hopes of promoting awareness, and financial assistance to Families of Krabbe children and others afflicted with Leukodystrophies. In some cases it could be medical equipment, such as suction machines, breathing machines, and feeding machines.

We also help with transportation and living expenses, while children are being treated at Hospitals during their evaluations or Cord Blood Stem Cell Transplants, which is the only treatment available for this disease as of this date. Unfortunately, at times, we are also asked to help with funeral expenses. A portion of the money raised also goes to the “Hunters Hope” Organization to support their efforts in promoting Newborn Screening for all metabolic diseases including Krabbe, with hopes of finding a cure for this, and other Leukodystrophies.

The Liam Hammonds Memorial Foundation raises money to accomplish our goals in two ways, by holding benefits and fund raisers, and by accepting private donations. Through the Benefits / Fund raisers, we incorporate two of our goals, raising money, and promoting awareness. We feel that the general public is the easiest way to get the word
out. Through the public, we’re able to pass on information to parents, who then will pass it along to their doctors.

We are, unfortunately, finding that Krabbe is not as rare as we were told when Liam was diagnosed. So there is still much more work to be done.

Our final goal is to someday see that the Liam Hammonds Memorial Foundation is no longer needed, as there will be newborn screening, and immediate treatment for Krabbe and other Leukodystrophies.